Raising Dad: Saying Goodbye


Editor's Note: Mark Lee encourages as many NUVO readers as possible to join him in a Walk to End Alzheimer's on Oct. 13 at Military Park. Find

out more about Team "Raising Dad", and how to either make a donation

or join the team, here: http://act.alz.org/site/TR/Walk/IN-GreaterIndiana?px=8353544&pg=personal&fr_id=3360.


one of the most difficult things I have ever had to do was speak at my father's

funeral. I spent the week leading up to it preparing a video tribute, and

writing my speech, so when the moment came to get up and speak, I was overcome

with emotion. I've spoken at funerals before. And throughout my life I have been fortunate enough to do

everything from riding my bicycle from LA to NY, to photographing some of

America's biggest stars. I've even held my own at the dinner table with a bunch

of hard core Republicans during election time. But nothing I have done could

have prepared me for saying a few words at my own father's funeral.


brother and sister both asked that I sit next to mom. During the prelude, Dad

asked that they play "Sweetheart of Sigma Chi" and the IU Fight Song, among five other songs he wanted to have played at his

own funeral. Our choir director decided to surprise my mother by having her

husband, who was also a Sigma Chi, sing the actual words to "Sweetheart of

Sigma Chi." It was at this point that the floodgates were opened, and the

death of my father became a harsh reality.


rubbed my mother's back, and offered her some Kleenex as she continued to sob.

The entire time, I was trying to keep from crying myself, knowing that I had to

get up soon to speak. My sister had our nephew Jordan read what she had written

on her behalf. I'm starting to think that was probably a pretty good idea. Wish

I had thought of it!

A little over 22 years ago, my

father's sister, Virginia, passed away. On the day of her funeral, the minister

told a story about something she had done that nobody else in our family knew


Breathe ...

Just breathe...

Apparently, back in the 60s,

she was commissioned to paint a mural in the basement of her church of Jesus

surrounded by children. According to the minister, the church where she was

commissioned to paint this mural, burnt down in the 70s.

The entire church was destroyed, except for the wall where my aunt painted this

mural. So when they re-built the church, they ended up building the entire

church around this mural... The minister then invited those of us who had not

seen what she had done to walk downstairs and take a look at her painting.

Alright. Well, my brother is smiling... So

far so good!

Unfortunately for us, my

father did not have an artistic bone in his body. So there aren't any murals I

can invite you to look at.


God people laughed! Dad would have liked that... God I miss him!

But there are two things that

my father and his sister did share: They were constantly doing things for

others, and neither one of them did it for the recognition. As many peopleÉ


the first wave of emotion just hit me. ... Wow! Wow ...

As many people here can

attest, dad had this uncanny ability to make people feel welcome as they walked

into our church. "Thank you so much for coming here! I'm glad you could

join us!" And if he didn't know who you were, he would write down your

name and number, and give you a call later on in the day.

So instead of inviting you to

take a look at a mural in the basement of a church, I would invite each of you

to stand up, and greet the person next to you in his honor ... And if you don't

know their name, find out what it is, and let them know how happy you are to see



one of the best ideas I came up with was to have people greet one another in

the middle of my speech. It gave me time to collect my thoughts, and to hug a

couple of people in the process.


a little over10 years, my father was the head

usher at New Hope Presbyterian Church in Fishers Indiana. In the early days,

before we had an actual building to call our own, we met in the basement of

Shirley Brother's Funeral Home, followed by Conner Prairie, and finally

Hamilton Southeastern High School before having our very first service at our

current location on Christmas Eve of 1997. So for the four years prior to this

time, dad's job involved arriving an hour early to set up chairs, and tearing

them down after the service — placing them in a trailer where they stayed

till the following week. It also meant lining up ushers and greeters for every

service, and calling them the night before to remind them of their duties. On

days when people cancelled out on him at the last minute, he called on his more

reliable ushers and greeters for back up.


as I mentioned, he didn't do it for the recognition. He volunteered to help out

in this way because it needed to be done, and it was something that he was good

at. Still, his favorite part of the job, and the part he excelled at, was

greeting people as they entered and left our church. For the entire time he did

this, whenever we had a new members class, dad was one of the first things

people mentioned when they said why they were thinking of joining our church. He

would shrug it off as if it was no big deal, and then ask the people who

mentioned his name if they would be willing to usher or greet the following



wasn't until dad started to lose his memory, and could no longer remember the

names of people he had known for years, that he resigned from his position as

head usher. It embarrassed him that he could no longer remember people's names,

and he apparently confided to mom, "Perhaps God is punishing me for taking

such pride in knowing who people are." I, for one, refuse to believe that

God is that vindictive. Rather, I believe He was giving others a chance to step

up to the plate, and repay my father for all he had done for them. And boy did

they ever! Our minister said it best when he said, "I have never been so

proud of our church family as I have these past couple of years." During

that time, they did everything from build a ramp in our garage for my father's

wheelchair, to delivering meals, and making a Valentine's Dinner for my mom and

dad that mom and I will never forget.


time. Please sit down so I can finish saying what I came here to say...

Perhaps one of the best

decisions I ever made in my 50 years of living, was to move in with my parents two

years ago this November, to help care for my father.


Mother of God! I don't know if it was seeing my father's casket in front of me,

or the reality of the situation, but those words in particular took my breath


Mom and I wanted to keep him

out of a nursing home for as long as humanly possible, and I thank God that we

did. But it became clear that if

he was to fall, there was nothing mom could do about it... so that's where I came


My main job during this time

was to help walk dad from one room to the next, and to help get him ready for

bed. And for anyone who has worked with someone who has Alzheimer's, you

already know that nighttime is one of the worst times of day. He cussed me out

like nobody's business! And for anyone who knows my father, you KNOW that this

is completely out of character!

Growing up, the worst thing to

ever come out of his mouth was "Golly Ned!" To this day, Bob, Beth

and I have no clue who Ned was; but we knew that any time we heard his name

used in vain, we were in trouble - me especially.

So dad used words I never

heard come out of his mouth before, the entire time as I was helping him put on

his pajamas, or while I was slipping on his slippers. And yet, no matter how

much he cussed me out while we were doing these things, by the time I tucked

him into bed, turned out the lights, and was getting ready to walk out his

bedroom door, he always said the same thing, "Thanks so much for helping

me... I love you!" "I love you too, DadÉ Good night."


was one thing to write those words for my very first blog of "Raising


but completely different to say them

out loud at his funeral.


January 13, 1994, I was sleeping on a cot next to Mark Wright in St. Vincent's

Hospice Center when the nurse woke me to let me know he had taken his last

breath. I woke up only moments before thinking that he had stopped breathing,

only to be relieved to see him breath once more. Shortly after she woke me, I

called up all of his family members to let them know, hanging up on his father

when he started to thank me. I then re-gained my composure before calling my

own father to let him know. It was a little after 3 in the morning, and yet my

own father thanked me for calling him, and managed to say how much he loved me

before I hung up on him as well — not out of anger, but because I broke

down and cried the moment he said he loved me.


same exact tidal wave of emotion, of wanting to break down and cry, and

"hang up" on what I had written and the people standing in front of

me, rushed over me as I said those words, "Thanks so much for helping me...

I love you!" I love you too, dad ... and it's killing me to know that I am

never going to hear you say those words again.

Breathe. ...

just breathe!

Anyone who knew my father, knows that he loved to flirt! Some guys golf, other guys drive fancy cars. ... Dad just LOVED to

flirt! It was one of his favorite pastimes! Whether it was with Sima from Starbucks, or Carolyn from New Hope, it was what

kept him going on a daily basis.

About a year ago, mom was

worried that dad may be coming down with pneumonia, so we took him to the

emergency room "just to make sure". As fate would have it, we ended

up having a female doctor, and dad flirted with her the entire time! I finally

just turned to mom and said, "Seriously mom ... The day he stops flirting,

THAT'S the day we need to worry!"

Fortunately for us, and for

mom especially, after 59 years of marriage, one of my father's favorite people

to flirt with has always been my mother.


the emotions of the moment hit me like a ton of bricks as I looked at my mom ...

"Look away... Look away... Oh God, not him... Anyone but him..."


out in the sanctuary, among the many mourners who came to pay their respects at

my father's funeral, was the senior pastor from the church where I grew up. My

father was on the search committee that found this particular minister, much in

the same way that I was on the search committee years later that found the

minister we currently have at New Hope.


December of 1990, the senior pastor of the church I grew up in, tricked my

father — and in turn, me — into outing our associate minister

Howard Warren as being both HIV positive and gay. My father sat me down in the

living room to let me know that Howard informed our session he was both of

these things before turning in his resignation.


was surprised when I breathed a sigh of relief and said, "Well it's about





he told me about six months ago."


didn't you say anything?"


not my place to say anything. He could lose his job if anyone was to find out. But

if he's ready to start telling people, then good for him!"


out I spoke too soon. Howard never said a word to the session about anything,

let alone his status. Our pastor told my father he said those things, in hopes

that I would confirm his suspicions. It wasn't until Howard confronted me a

week later that I realized what I had done, and by that time it was too late. The

session had already confronted Howard with the news of his status, and asked

him to resign. Fortunately, the story does not stop there, and I thank God

every day for the way this particular story ends.


a month after Howard was asked to leave, I wrote a letter to our senior pastor:

Howard was positive, the son of one of our members had already died from

complications of AIDS, and I was aware of a couple of other members of our

congregation who were also HIV positive; and yet, nothing was said from the

pulpit about reaching out to those people, or their families, in their hour of



order to make sure our minister read what I had written, I sent copies of the

letter to members of the session, as well as a few prominent members of our

congregation. But first, I sent a copy to my father. I wanted him to be the

first to know what I had written. He called me at work the day he received my

letter, and let me know that even though he did not agree with everything I had

to say, he was proud of me for standing up for what I believe in. He also let

me know that I had his blessing to send my letter to our minister.


wasn't long before our minister let me know that he was exceptionally

"busy" now that Howard was no longer working at our church, and the

soonest he was able to meet with me about my letter was 2 months from the day

of his call. I said, "That sounds great! I will see you then!" The

very first words out of our minister's mouth when I met with him in his office

were, "I think this is just one more thing you are doing to embarrass your

father." I then told him how I sent a copy of the letter to my father

first, and the things my father told me. "Oh." That was all he could

say, "Oh."


B. Our minister then insisted that if I was going to help out with our junior

and senior high youth, I needed to set an example for the kids by sitting

through his sermons. He had been the senior pastor of our church for 15 years

at that point, and his sermons were all on a three-year cycle. But I wanted to

continue working with our youth, so I agreed to listen to them for the fourth

or fifth time.


wasn't until the Sunday after my father's sister died that I

decided enough was enough. I spent 30 minutes after the service trying to have

a word with our pastor, while he kept trying to avoid me. When I finally had a

chance to tell him the news, and how he might want to give my father a call,

for a brief moment there was a look of relief on his face (as in, "Thank

God, I thought you were going to bitch about my sermon"), followed by a

look of concern and, "Thank you so much for telling me, I will be sure to

give your father a call." I knew at that moment I was going to church for

all of the wrong reasons, and needed to go somewhere else.


father was a "big picture" kind of guy. And in the overall scheme of

things, everything worked out precisely the way it was supposed to. Howard

Warren was friends with the head of the Presbytery —whose son was also

HIV positive — and who insisted our church pay for Howard to work for a

minimum of two years as the head of pastoral care at the Damien Center. Howard

FLOURISHED in his new career, and worked there for 10 years before he passed

away. Shortly after I left the church, our minister encouraged my parents to

check out this new church that was starting out in the basement of a funeral

home. By the time they moved from the funeral home to Conner Prairie, my

parents convinced me to check out this new church as well, and I haven't looked

back since. So, despite all of the manipulation, lies, and un-Christian like

behavior that led to this pivotal moment in our lives, God's Master Plan

prevailed. Seeing our former senior pastor at my father's funeral, just

reminded me of how fortunate my family has been to spend the last 20 years of

our lives at this new church in Fishers.

And finally, as several

members of our congregation have pointed out to me: Dad didn't die. He was

promoted to Head Usher up in Heaven. So when our time comes to walk thru the

Pearly Gates, he will be the first one to greet us and say, "Thank you for

coming! I am so glad that you're here!"


Crap! That was toughÉ I was personally surprised at how emotional the service

was. Especially when my brother spoke shortly after me. He's a comedian, so I

expected to laugh; but I did not expect to cry. As he mentioned a couple of

times in his speech, "the emotions come in waves, and you never know when

the next one is going to hit you."


question I probably got the most the day of my father's funeral was "What

do you plan to do now that he's gone?" Honestly, I have no idea. He has

been such a huge part of my life these last couple of years,

I'm not sure what I'm going to do. My initial thought is to write an actual

book about our time together, using it as both therapy, and a way to take my

life in a different direction. Mostly I'm hoping that writing a book will be

the best possible way to say goodbye to the man I loved. I'm also thinking a

lot about traveling to different parts of the world before the inevitable

happens, and it's time to start working on "Raising Mom." But right

now, all I really want to do is get a good night's sleep, and work on living up

to the legacy that is my father. From that standpoint, the journey for me has just begun...